Prader-Willi Syndrome Association UK

01332 365676
kwilkinson@pwsa.co.uk
Prader-Willi Syndrome Association UK is the only charity specifically supporting PWS community. With your help we can raise awareness and funds to support this rare genetic syndrome.

PWSA UK supports parents, families and professionals by providing a helpline, support, guidance, training and publications about PWS. PWS is a rare genetic syndrome where babies are born with low muscle tone and have difficulty feeding. At around 2 years old they then develop an insatiable urge to eat, they often have short stature and learning difficulties. It is incurable.