The Neuro Foundation
020 8439 1234
Please jump for The Neuro Foundation because; Every day a baby is born in the UK with Neurofibromatosis, it is one of the world's most common neuro-genetic conditions and as yet there is no cure. There are over 25,000 people in the UK affected by the condition.
Our vision is to improve the lives of those affected by Neurofibromatosis by funding a team of five specialist nurses and a national helpline. We desperately need funds for more nurses. Thank you.
The Neuro Foundation, a charity established in 1981, supports families affected by Neurofibromatosis (NF). Since that date, the purpose of the charity has remained consistent: to improve the lives of those with Neurofibromatosis.
Neurofibromatosis is one of the world's most common neurogenetic conditions. The effects on families are devastating, more so because they are unlikely to have heard of NF before diagnosis and won't know where to get help.
Half of the people diagnosed with NF are the first person in the family: it has happened by chance. There are over 25,000 people in the UK affected by the condition; every day in the UK a baby is born with NF. As yet there is no cure.
Categorised into NF1 and NF2, the severity of the condition will vary from person to person and whilst some may live a normal life, many of those with NF could have a multitude of medical, physical and psychological complications. Neurofibromas, sight defects, malformation of the long bones causing amputations, learning difficulties and speech problems are just a few of the symptoms associated with NF1.
With NF2, brain tumours, tumours on the spine, cataracts and deafness leading to a lack of mobility are the norm.
Neurofibromatosis is variable and unpredictable. Managing this uncertainty is very difficult for the family and can challenge how they live their lives. Through The Neuro Foundation's services we reach out to these families, both at the time of diagnosis and when they face difficult times in the future.
The charity funds five specialist nurses who help patients and families, giving vital support in their homes, schools and hospitals offering practical and emotional support. The charity has an information service and telephone Helpline to support families in difficulty. These combined services act as the bridge between families and the medical and community services they need.
The work of The Neuro Foundation is a lifeline for families in distress.
The Neuro Foundation is almost entirely reliant on the generosity of its donors to help in its work to improve the lives of those affect by Neurofibromatosis. Please support our charity! Thank you so much.