Primary Ciliary Dyskinesia Family Support Gro
Please jump for the PCD Family Support Group to help raise funds for our volunteer run charity.
We are a UK based Family Support Group and a registered charity run entirely by a team of unpaid volunteers. Our objectives are to: 1. Provide support to patients and their carers who have, or are suspected of having, PCD 2. Bring PCD to the attention of medics who may not come across it in their day to day work and provide an up to date information service for them and the general public. 3. To promote research to aid diagnosis and treatment of patients with PCD. 4. Support the NHS and other bodies to ensure patients have access to diagnostic services and on-going care. 5. Fundraise to support these activities.